PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions triggered by a misdirected immune response. The charity offers:

  • Resources for parents including diagnostic criteria and details of local support groups. 
  • Resources for Medical professionals  
  • Resources for teachers and Schools 
  • Teacher training package 
  • Facebook group for parents/caregivers 
  • Facebook group for Young People age 12-17 with the condition. 
  • Facebook group for Adults 
  • Links to further Research 
  • Advocacy and support from the charity

Website

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
Telephone
0708764750 0708764750
E-mail
secretary@panspandasuk.org

Availability

Referral not required
Referral Details

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

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