Nystagmus Network
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Social media
Linkedin: Linkedin.com/nystagmusnetwork
Twitter: Twitter.com/NystagmusUK
Facebook: Facebook.com/NystagmusNetwork
Instagram: Instagram/NystagmusNetwork
Website
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Website Address
Scan to visit this website
Who to contact
- Contact Name
- Sue Ricketts
- Contact Position
- Executive Information and Development Manager
- Telephone
- 01427718093 01427718093
- info@nystagmusnet.org
Location
- Name
- Nystagmus Network
- Address
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70, Hyde Vale
London
London
London - Postcode
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SE10 8HP
View SE10 8HP on a map - Notes
We operate a virtual service by telephone and website and as such do not have a venue open to public.
Time / Date Details
- When is it on
- 24/7 Website support and information. telephone helpline weekdays 9-5
- Time of day
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Afternoon
Evening
Morning - Session Information
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We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service
Costs
- Nil Per week
- Details
- Service and information is free however, some may choose to become members at very low cost
Availability
- Referral not required
- Referral Details
Self referral by telephone/emails
Other details
- Related Links
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Website Address
Last Updated
Last updated: